The appointment was short and sweet. We were in and out of Scottish Rite in an hour yesterday, which must be some kind of record. The patient, however, was anything but sweet.
Julia made yesterday's hour long visit to Scottish Rite seem like one of our longest. She was terrible, really terrible!
In her defense I think this was her ninth medical appointment in about a month. She has had a MRI,allergy skin testing, blood work twice, a renal ultra sound, booster shots... not to mention visits to five of her doctors for check-ups in the last several weeks. Apparently, she decided that going to the doctor yesterday wasn't really on her to-do list so she wasn't going to make it easy on anybody.
She is always so charming and so brave at her appointments. I didn't know what to do with her yesterday. She was flopping around on the floor, refusing to answer questions nor allowing anyone to touch her.
I had to hold her down so the nurse could take her blood pressure while she yelped "you are hurting me!" Then, the only thing she said to her Urologist, who couldn't be nicer and more friendly, was "I don't like you."
The good news is that her renal ultrasound showed that Julia's kidneys and bladder are healthy and growing as they should be. Big sigh of relief. Dr. Gargollo wants us to try taking her off of her daily antibiotic and see if she can be infection free without it. He is worried she will develop an antibiotic resistant bug if she stays on daily antibiotics. That is very scary to think about, but so is the thought of her getting a kidney infection. When she gets a UTI, she gets so very sick. Today is her first day off of antibiotics so fingers crossed and lots of prayers that she will be okay.
After we saw Dr. Gargollo, I had the pleasure of taking the little monster to orthotics to be casted for a new brace for her left foot. The physical therapist and orthotist who saw her in clinic last week felt like some adjustments to her AFO might keep her from falling down so much. Maybe it will help her dance moves as well!
I was pleased that she didn't tell her orthotist that she didn't like him. She did, however, cry about how painful being casted was the entire time. "It hurts mommy; he's hurting me." She has been casted a bunch of times. Nothing about being casted is painful, at all! It wouldn't hurt even if she could feel her feet. She could have won an Oscar for the drama she displayed yesterday afternoon.
I have never been so glad to get out of Scottish Rite Hospital. I have to take her back on May 6th to get her new brace. Hopefully, she will have a better attitude by then.
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